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Meds Fibromyalgia

Discussion in 'Why Do You Medicate?' started by momofthegoons, May 12, 2017.

  1. momofthegoons

    momofthegoons Vapor Accessory Addict Staff Member

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    Marijuana Rated Most Effective for Treating Fibromyalgia


    Medical marijuana is far more effective at treating symptoms of fibromyalgia than any of the three prescription drugs approved by the Food and Drug Administration to treat the disorder.

    That is one of the surprise findings in an online survey of over 1,300 fibromyalgia patients conducted by the National Pain Foundation and National Pain Report.

    Cymbalta graphThe FDA has approved only three drugs – Cymbalta, Lyrica and Savella — for the treatment of fibromyalgia. Although they generate billions of dollars in annual sales for Pfizer, Eli Lilly, Forest Laboratories and other drug makers, most who have tried the medications say they don’t work.

    The National Institutes of Health estimates that 5 million Americans suffer from fibromyalgia, a poorly understood disorder characterized by deep tissue pain, fatigue, headaches, depression, and lack of sleep. There is no known cure and the disorder is difficult to treat.

    “Fibromyalgia is devastating for those who must live in its grip. There is much we do not understand. We need innovative ‘out of the box’ solutions that change the face of this disease,” said Dan Bennett, MD, an interventional spine and pain surgical physician in Denver, Colorado, who is chairman of the National Pain Foundation.

    Lyrica graphMany who responded to the survey said they had tried all three FDA approved drugs.

    “The prescriptions that are available for treatment have more negative side effects than positive aspects,” said one fibromyalgia sufferer.

    “I haven’t found anything! Please find a cure or at least a medicine that will take our pain away,” said another.

    Asked to rate the effectiveness of Eli Lilly’s Cymbalta (Duloxetine), 60% of those who tried the drug said it did not work for them. Only 8% said it was very effective and 32% said it helps a little.

    Among those who tried Pfizer’s Lyrica (Pregabalin), 61% said it did not work at all. Only 10% said it was very effective and 29% said it helps a little.

    Savella graphAsked to rate the effectiveness of Forest Laboratories’ Savella (Milnacipran), 68% of those who said they tried the drug said it didn’t work. Only 10% said it was very effective and 22% said it helps a little.

    About 70% of the people who responded to the survey said they had not tried medical marijuana – which is not surprising given that it is still illegal in most states and many countries. But those who have tried marijuana said it was far more effective than any of the FDA-approved drugs.

    Sixty-two percent who have tried cannabis said it was very effective at treating their fibromyalgia symptoms. Another 33% said it helped a little and only 5% said it did not help at all.

    “I’ve found nothing that has worked for me, apart from marijuana,” said one survey respondent.

    marijuana graph“Nothing but medical marijuana has made the greatest dent in the pain and mental problems,” said another.

    “Marijuana does help a LOT it numbs the pain. But it doesn’t last long and it makes your brain foggy,” wrote another fibromyalgia sufferer.

    Survey respondents said massage, swimming, acupuncture, muscle relaxers and other alternative treatments also helped relieve their symptoms. Many said they take opioids to relieve their pain – although narcotic painkillers are generally not prescribed to treat fibromyalgia.

    Other survey findings:

    Four out of ten (43%) fibromyalgia sufferers feel their physician is not knowledgeable about the disorder.
    Over a third (35%) feel their physician does not take their fibromyalgia seriously.
    45% feel their family and friends do not take their fibromyalgia seriously.
    Nearly half (49%) said their fibromyalgia symptoms began at a relatively young age (18-34).
    Only 11% were diagnosed with fibromyalgia within the first year of symptoms.
    44% said it took five or more years before they were diagnosed with fibromyalgia.
    Many survey respondents lamented that the disorder had taken over their lives, leaving them socially isolated, fatigued and in constant pain.

    “I was once an active person and have now virtually become a hermit due to this disease,” said one.

    “The worst thing about having fibromyalgia is disappointing loved ones when I can’t do things with them,” wrote one fibromyalgia sufferer.

    “Having fibromyalgia is a life sentence. One simply cannot have a productive life living with this disease,” said another.

    The 1,339 people who participated in the survey were self-selected as fibromyalgia sufferers. Ninety-six percent of them were female.

    This was the second online survey of pain patients conducted by the National Pain Foundation and National Pain Report. The first survey found that over half of patients worry that they are perceived as “drug addicts” by pharmacists. Eight out of ten said they had stopped seeing a doctor because they felt they were treated poorly.

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  2. momofthegoons

    momofthegoons Vapor Accessory Addict Staff Member

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    More evidence of cannabis being a more effective medicine than traditional pharma drugs.... this article is from 11 months ago.

    HUGE FIBROMYALGIA STUDY FINDS - CANNABIS BASED MEDICINES KICK ASS

    [​IMG]

    Morgan Freedman - Sage


    "'Marijuana is the only relief from Fibromyalgia and Big Pharma is not happy about it." - Morgan Freeman
    A study of about 1400 Fibromyalgia patients conducted by the National Pain Foundation found that cannabis based medicines were FAR MORE EFFECTIVE than ALL three FDA approved drugs.




    FDA APPROVED DRUGS - A BUST IN FIBROMYALGIA
    There are only three FDA approved drugs for fibromyalgia; Cymballa, Lyrica and Savella. Though these drugs generate billions, most fibromyalgia sufferers are frustrated with them; most say they don't work and have side effects that seriously affect their quality of life. Let's take a look at these FDA drugs and see what pharmacopeia has to say about them.

    Lyrica (pregabalin) is an antiseizure medication that works by slowing down brain impulse activity. Lyrica also is meant to modulate chemical processes that produce pain signals generated by the nervous system. Read about the horror show that are the side effects of Lyrica - from the manufacturers.

    Duloxetine, or Cymballa is a serotonin–norepinephrine inhibitor, meant to balance pain, moderate mood and relieve depression. The serious side effects are too many to list here, but include liver problems, nausea, skin allergies, mental issues, diarrhea, suicide and so on.

    Savella or Milnacipran is a drug that is meant to normalize the activity of neurotransmitters. It is speculated that these chemicals are related to pain in fibromyalgia. Side effects quagmire is documented here.


    “This disease turned me into a hermit, medical cannabis gave me my active life back .” - Patient


    Of course, if a patient is getting good results and don't have significant side effects and the medication is doing a good job, obviously the practicing physician will continue to recommend the use of FDA drugs. However, most of the clinical research strongly indicates that this is not the case; At the end of the day, it is up to you and your doctor to find the best available medicine or therapy to treat your conditions and symptoms.
    Meanwhile, patients and doctors with experience with Cannabis based medicines find that side effects are minimal to non-existent. Further to the point, a literature and internet search revealed not a single case of malpractice in the field of medical marijuana. See Medical Malpractice Reports for details.

    EXAMPLE - SIDE EFFECTS OF FDA APPROVED DRUG - SAVELLA FOR FIBROMYALGIA

    • caused some to feel light-headed, pass out
    • can blur vision, tunnel vision, eye pain or swelling, more
    • easy bruising, bleeding
    • painful, difficult urination
    • liver issues, nausea, stomach pain, itching, lethargy, loss of appetite, dark urine, clay-colored stools, jaundice
    • serotonin overload causing psychosis, agitation, hallucinations, fever, fast heart rate, overactive reflexes, more...
    • sodium imbalance (low) causing migraine, confusion, slurred speech, severe weakness, vomiting, more..
    • severe nervous system reaction - rigid muscles, high fever, sweating, confusion, fast or uneven heartbeats, tremors; more...
    • severe skin reaction with fever, sore throat, swelling of face or tongue, burning eyes, skin pain, more...
    • more hazardous for elderly

    Side effects of cannabis based medicines high in THC include anxiety, paranoia. For those that experience undesirable effects from THC, strains containing high quantities of non-psychoactive CBD (with low THC) may be used. For more about the side effects and non-addictive nature of cannabis based drugs, click here.

    "In view of the very low toxicity and the generally benign side effects of this group of compounds (cannabinoids in marijuana), neglecting or denying their clinical potential is unacceptable." - Raphael Mechoulam, PhD - Pioneer of Israel's Medical Marijuana Program

    US FEDERAL GOVERNMENT FUNDED RESEARCH BURIED
    Interestingly, Dr. Mechoulam pioneering work was funded in large part by the US Federal government. Though the conclusion of the research effort was that cannabis had overwhelming efficacy and potential in treating a myriad of disorders, the information was buried, thrown by the wayside, that is until today.

    "For you the person living with pain, it’s about a better understanding of why your pain is occurring - what is the disease – how it works so that you can better understand your pain. We will build a digital community so that you can share in other people’s stories, understand medications, new technologies, connect to others - this will lead to a true understanding of pain as a disease … lead to a revolution in the understanding and treatment." - Daniel S. Bennett, MD Chairman, The National Pain Foundation

    Fibromyalgia is characterized by deep tissue pain, depression, headaches and insomnia. Orthodox medicine claims that there is no known cure and it is difficult to cure. The majority of the 1400 patients in the study exposed the following eye opening reality about FDA approved drugs.
    "Fibromyalgia is devastating for those who must live in its grip. There is much we do not understand. We need innovative ‘out of the box’ solutions that change the face of this disease.” - Dan Bennett, National Pain Foundation.

    Cymbalta was found to be very effective in 8% of fibromyalgia cases, marginal in 32% and did not work at all in the remaining 60%. Lyrica (Pregabalin) and Savella scored almost the same recording 10% effectiveness and 60% or more, ineffective. Comparing these dismal results with placebo, a sugar tablet and figuring in side effects, one wonders why these medications are prescribed at all."The prescriptions (I've tried) that are available for treatment do more harm than good” - fibromyalgia patient

    About 1000 of the 1400 patients had not tried medical marijuana previously. The 400 or so that tried marijuana, said it was far more effective than any of the FDA-approved drugs they tried.

    In another study, sixty-two percent of patients that tried cannabis said it was very effective in treating their fibromyalgia symptoms, 33% said it helped a bit, and only 5% said it did not help at all. It should be noted that most patients were not aware of the many strains of marijuana that might improve therapeutic results considerably. The vast majority said side effects were minimal to none as compared to the FDA drugs.
    Other therapies that eased fibromyalgia symptoms include massage, swimming, yoga, acupuncture. Many said opioids worked to relieve their pain – but these narcotic painkillers not prescribed normally prescribed to treat fibromyalgia.
    Other eye openers in the survey includes:
    • Nearly half of fibromyalgia sufferers felt that their physician was knowledgeable about their disorder.
    • Over a third felt their physician did not take fibromyalgia seriously
    • Nearly half felt their family and friends do not take fibromyalgia seriously
    • Half patient's fibromyalgia symptoms began in early adulthood
    • One in ten was diagnosed in their first year of symptoms
    • Half of patients said it took more than five before they were correctly diagnosed

    Respondents lamented that fibromyalgia dominated their lives, leaving them isolated, tired and in constant pain. Further to the point, patient quotes;

    “The worst thing about having fibromyalgia is disappointing loved ones when I can’t do things with them,” wrote one fibromyalgia sufferer.

    “Having fibromyalgia is a life sentence. One simply cannot have a productive life living with this disease,” said another.

    The 1,399 people who participated in the survey were self-selected as fibromyalgia sufferers. Ninety-six percent of them were female.

    Another online survey of pain patients conducted by the National Pain Foundation and National Pain Report found that over half of patients worry that they are perceived as “drug addicts” by pharmacists. 80% said they had stopped seeing a doctor because they felt they were treated badly.


    HOW CAN FIBROMYALGIA PATIENTS GET MEDICAL MARIJUANA FOR THE FIRST TIME?

    It is ideal to get medical professional advice and to join a peer group of Fibromyalgia sufferers that has deep experience in the disease. However, often, the reality is that your doctor is not trained in Medical Marijuana and is hesitant to get involved, even though he might well support it - off the record. In this case, patients can simply get a doctor's recommendation for cannabis based medicines online.
    Today, social media allows people with any condition of symptom to share information. You are no longer isolated. Perhaps you'll come across a medical doctor who has effectively treated a Facebook friend. You might find your doppelganger, someone in the same age group, sex, with nearly identical symptoms - that shares with you, how they got rid of the hellish symptoms of fibromyalgia.

    RECREATIONAL MARIJUANA IS NOW LEGAL IN CALIFORNIA AND NEVADA
    If recreational marijuana is legal, why should I get a Medical Marijuana recommendation? Recreational sales of marijuana won't be legal until 2018. Weird but true, you can't buy marijuana legally but you can smoke it and grow your own. For the latest on rules and regulations pertaining to medical and recreational marijuana in Nevada and California click here.

    FIBROMYALGIA - MARIJUANA - WHAT PATIENTS SAY FACEBOOK - A MUST

     
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  3. momofthegoons

    momofthegoons Vapor Accessory Addict Staff Member

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    New cannabis patch for fibromyalgia pain and diabetic nerve pain treatment

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    Two new medications have been developed for fibromyalgia pain and diabetic nerve pain treatment by a company specializing in cannabis-based medicines. A Transdermal patch is placed on the skin and into the blood stream for the medication of fibromyalgia pain and diabetic nerve pain.

    The patched promote healing to an injured area of the body. As compared to other types of medication delivery such as oral, topical, intravenous, intramuscular etc, transdermal drug delivery flight path is more advantageous.

    The patch used for the diabetic nerve pain treatment provides the patient with a controlled release of the medication into the patient, it can be provided to the patient via various forms such as:

    1. Through a porous membrane covering a reservoir of medication.
    2. Body heat melting thin layers of medication embedded in the adhesive which will be containing high potency cannabinoid (CBD) extract, this extract slowly enters in the blood stream and then penetrates the central nervous system of the patient delivering the pain relief sought.
    The CEO of cannabis science, Mr. Raymond C. Dabney believes that the future of cannabis science is based on the development of these two new pharmaceutical medicinal applications. The company is striving to enhance the land capacity for growth and facilities to manufacture its own products to supply to scientists with proprietary materials to make these formulations. On the other hand cannabis company is also busy in researching more potential needs for cannabis medical applications and introducing the methods for delivery of these medications.

    Fibromyalgia is estimated to affect 2%-8% of the population while females are about double as likely to suffer from fibromyalgia condition. People with diabetic nerve pain and fibromyalgia experience chronic widespread pain and alarming pain response to pressure. Peripheral neuropathy (PN) is considered as damage or a disease affecting nerves which may impair sensation, movement, gland or organ function or other aspects of health depending on the type of nerves affected.

    ‘’CBD is the second major cannabinoid in marijuana after THC. Without the psychoactive effects that THC brings, it has anti-inflammatory and pain-reveling properties. MR Dabney also concludes that: ‘’ as more states nationwide legislate for the legalization of cannabis and cannabis-derived medications, here at Cannabis Science, the focus is on the development of pharmaceutical medications and applications to supply the huge growing demand expected over the coming few years.’’
     
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  4. ataxian

    ataxian Well-Known Member

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    Not just me?
    My 22 year old has fibro & CANNABIS has been the best for her needs!
    HUMBOLDT grown has worked the most effective!
     
  5. ataxian

    ataxian Well-Known Member

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    After the funeral of a HERO that is current in 2 days pop culture I must be truthful in this regard.

    CANNABIS is such a cure 4 many in 2 today’s conditions!
    Life saver is an understatement!
    I was looking 4 how high R U?

    6.8 non empirical estimate!
    Easy on the Kief!
    Maybe at 420 close 2-9 is da plan?
    @LesPlenty do U partake of CANNABIS in da middle of da week?
    Everyday 4 me?
    Do U have 420 where U R?
     
    Last edited: Dec 6, 2018
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  6. Whisper

    Whisper Well-Known Member

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  7. Vapeur Rogue

    Vapeur Rogue Est. 2013- Never Lookin' Back

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    I was diagnosed with Fibromyalgia, in middle school before pediatric fibromyalgia was a thing- it was my first diagnosed chronic condition (First that was not cleared as a misdiagnosis-but more on that in the relevant thread). Due to watching my grandmother struggle with Tylonol+ Codeine, my mother judge her personally for all the effects, along with being basically a throwaway patient after diagnosis, I've been trying to navigate fibro self-care/management on my own since. My diagnosis was also years ahead of any of the prescription drugs that are discussed nowadays so I have very little reference for them, and thus find it further alienating in Fibro circles.
    Thank you for posting these.
     
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  8. momofthegoons

    momofthegoons Vapor Accessory Addict Staff Member

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    Pharmaceutical-grade cannabis with THC shown to relieve fibromyalgia pain
    First time a randomised, placebo-controlled four-way cross-over study conducted into the therapeutic effects of inhaling company products

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    Company has clinical evidence that medical doctors are asking for when prescribing products Ron Ward / THE CANADIAN PRESS

    A study out of the Netherlands found that standardised pharmaceutical-grade cannabis with a high tetrahydrocannabinol (THC) content was effective in treating the musculoskeletal pain caused by fibromyalgia.

    Conducted by Leiden University Medical Centre (LUMC) in co-operation with Bedrocan International, the study involving the pharmaceutical-grade cannabis provided by the company further found “cannabis flos with only cannabidiol (CBD) did not provide the patients with relief.”

    The research involved a total of 20 patients treated at four distinct moments, as well as the administration of three different cannabis products provided by Bedrocan and placebo (cannabis without the main active substances THC and CBD) by a vaporizer.

    All subjects were exposed to externally inflicted pain by applying increasing pressure, reports the company, a producer of legal medicinal cannabis that provides standardised medical cannabis capable of being used as an active pharmaceutical ingredient (API) to the Dutch government. With two of the company products, “patients experienced significantly less pressure pain compared to the placebo,” the company statement notes.

    Tjalling Erkelens, founder and CEO of Bedrocan, sees the results as encouraging for patients. “The outcome is very important for patients who suffer from fibromyalgia. Now we have the serious clinical evidence that medical doctors are asking for when prescribing our products and that health insurance companies want to have, to legitimize reimbursement,” Erkelens points out.

    It is believed this is the first “scientific proof that at least two of Bedrocan’s products are effective in treating the pain symptoms caused by fibromyalgia,” says Professor Albert Dahan, head of LUMC’s Anaesthesia & Pain Research Unit.

    “The study is the first time that a randomised, placebo-controlled four-way cross-over study is conducted into the therapeutic effects of inhaling Bedrocan’s medicinal cannabis products,” the statement explains. Noting that “fibromyalgia patients experience pressure pain on muscles and tendons especially,” Dahan concludes “THC is effective in this specific condition.”

    Both Bedrocan and Dahan believe that “investigation is now required to determine whether the same results on pain relief can be reproduced in a long-term study with fibromyalgia patients,” the statement notes.
    “The next study takes place with patients at home,” he says. “I want to investigate whether THC can be used as an opiate-saving drug. Many people use, and abuse opiates, such as oxycodone. We think that you do not have to prescribe much oxycodone if you also allow patients to use THC,” he adds.





     
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  9. Madri-Gal

    Madri-Gal Well-Known Member

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    It's nice to see studies being done. It's also nice to see THC credited with medical benefit, as CBD usually gets that glory.
     
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  10. ataxian

    ataxian Well-Known Member

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    My DAUGHTER has FIBROMYALGIA as the best medical ever in her case is CANNABIS?
    CBD is the Hype currently?
    THC seems 2-B more effective 4 her?
    INDICA’s 4 her.

    SATIVA I love however they give her paranoia?
     
    Last edited: Jan 6, 2019
  11. momofthegoons

    momofthegoons Vapor Accessory Addict Staff Member

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    I would think that whole plant would work better... so it makes sense that THC works for your daughter imo.

    Sativas tend to wig me out a bit as well. There have been a few lemon strains I liked.. I do not have Fibromyalgia, but I do usually stick with Indica for my pain related needs.
     
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  12. ataxian

    ataxian Well-Known Member

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    I love INDICAS 4 parties!

    Hybrids 4day
    SATIVA 4 thinking hard or esoteric reading it helps me?
    Some SATIVA ‘S freak me out?
    4 ATAXIA THC seem’s more effective?
    My 22 year old daughter does better with INDICAS?
    Thank you 4 the Hot Tip on LEMON FLAVORED CANNABIS! @momofthegoons
     
    Last edited: Jan 6, 2019
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